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We are who we are
Posted On 11/18/2008 10:43:06 by candybrowneyes

Well none of us can change how we are born and what happens to us health wise.  5 months ago I never thought I would be going through what I am right now.  Over the past 3 years or so I knew my hearing was a SMALL problem.  Then all of a sudden out of nowhere all these other issues pop up.  I have born deaf family members (none of which were my parents, uncle aunt and 2 cousins) And here I am the lucky one that gets diagnosed with a disease that has played havoc on my life since the day it came into it.  Like a friend here said to me when I first found out, Some things that have happened are a pleasant surprise and other things have not been so great.  Its hard living in a world where EVERYONE you know is hearing. They think because I have hearing aids I can hear things properly and everything they say.  I struggle daily because I have always been the person who entertains and is involved in every conversation. Now I sit back and kind of watch what is going on because it is very hard for me to understand them.

Someone pointed out a video to me that was an open letter to me. I watched it and the truth is, Yes I was hearing at one time. What some Deaf people do not understand and get is that it is very hard to make a transition into a world where you know nothing except what you learn. I am thankful for the fact that I have the writing skills and grammar now that I wouldnt maybe have had before.  Hearing people automaticly think because you still have SOME hearing you can hear, Deaf people think because I can hear a little I hear everything but its going, I have struggled with losing more and more hearing.  The first hearing aids I had were pushed to the limit within a month and a half of having them. Now I have new ones.  Being the site moderator has been a complete blessing to me. It has opened up a small part of the Deaf community for me and is helping this transition to be a little better. When I get frustrated with people in my life I come here and read and interact with everyone here. I love that I can do that and not feel weird about it or feel frustrated.

All I know is, I was born different, I don't waste my time wondering. I live my life with no regrets and I don't get angry at the world for being naive and intolerant. You will find it is a terrible way to live day to day.  I go with the flow, I may shed a few tears here and there but this is who I am, hearing, HOH and eventually Deaf. Its me, love me or love me not smile

Tags: People Life HOH Deaf Hearing



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Viewing 1 - 4 out of 4 Comments

From: floridagal
11/19/2008 02:13:35

well candy, we all go tho life in differents way but one things we all deafs ppls always stick togethers like family no matter how bad that come anyone 's way bec there always friends there lend hands to help and listen even thro. most hearing ppls dont understand our world of silent which sad in way bec hearing all think we dumb and deaf which mainly we not ...we do things differents then hearing world do but what come to is always way to communications for many way like paper and pen, or body language too....i for one i been tho alots of my life but im always stay strong and think postions way to life days by days and enjoy life what come ur way no matter what..life too short ..smile.....thank candy post this ..hugs



From: planetnaty
11/18/2008 14:18:19

depressing ha just kidding well the good thing is we can come home after work and read stories like we our selves have experienced and know that we are not alone ,a minority, but not alone.sometimes i read blogs or forums and i feel like i wrote it



From: Spelchek
11/18/2008 11:53:36

Sounds like a familiar fork in the Road of Life; similar to my journey. I was the guy that turned people on to new music. I was the guy with the quick wit in conversations. Then, it was taken away without warning. I started to listen to Talk Radio, because my beloved music was all distorted. I would sit in the corner in group settings, hoping nobody would notice my hearing loss. What happened was I became a different person. Those that counted on me for my wit were left with a new buddy with bad hearing. I tried hearing aids with them, but found myself frustrated. Mom would sit in her big chair with the TV cranked and holler at me to "Wear your damn hearing aid" when the volume of her TV made conversation impossible for me. For those that cared, I explained the way aids work. They are not eyeglasses. Most people think you slap the hearing aid in your ear and go back to your old self. Yes, I call my world in the middle because I was born hearing, and after about 36 years, I started the journey into the Deaf world. Some hearings say "Good Riddance" and some deafs say "Stay out! You don't belong." I consider it a learning opportunity to make this journey. Not many of the "normal" people in society would get to experience this type of thing until they are quite old. You and I get to experience it when we are young enough to get involved. I plan to make the most of it.



From: MSMERMAID4U
11/18/2008 11:51:04

yes candy its very true what u have said i ve been thru that  too and still am right now even tho im profoundly deaf half of the family forgets  i have several friends that are deaf and they dont speak as well as i do  and my family remmy s they are deaf but for me no


cuz of my speech its excellent really  i may  pronounce some words wrong but  ppl think im from another country with my accent lolz thank god for that at times but  yet  for them to not believe i dont hear is the problem  but life is full of happiness for me  and im just glad i cant hear thats it nothing else is wrong  its better than not seeing the world  not seeing ppl etc  glad i have my eyesight miss my music but headphones if they re powerful enuff to listen ot my country music what a lifesaving device this is smiles  i have other music i like to listen to  all depends on my moods but im more for country  than any thing  smiles have a great day





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