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I knew it was going to happen...
Posted On 10/07/2008 09:36:39 by candybrowneyes

Yesterday I got a phone call from my doctor about some test results over the last few weeks that had been taken.  Since my hearing had dropped significantly, I have been having dizzy spells and a few other issues. They want to take an MRI and a few other tests to rule out possible problems which may have caused these things.

In the end I have been diagnosed with Menieres Disease.  It was shock to my system. I cried a lot and I still am off and on, but I suppose all I can really do is hope for the best.

I remember the day I had went to see the doctor about this for the first time. I hadn't been getting any sleep because I felt like my head was going to explode from the loud ringing in my ears. I cried and cried and called my mother and she said I needed to make an appointment.

My hearing had been slipping over time and it didn't help that I have had HOH people in my family and a Deaf uncle.

My dad called me this morning to check on me which he always does.  I have had more of a bond with my father my whole life than my mom I suppose, mainly because I am just like him. Hard headed, independant. Today he asked me if I prayed to God about this, something he has never asked me before.  He has been having his own problems with health lately that really scare me but it made me smile and cry at the same time that he thought to call me and see how I was doing.

So now I have this thing to deal with. I need to keep focused and keep going and not let this thing get the best of me.

Love and light everyone

Shawna

Tags: Menieres HOH Hearing Deaf Sad



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From: candybrowneyes
10/08/2008 01:52:02


Spelchek wrote:

As you may know, I also have this affliction. My advice is to avoid: stress, smoking, sodium, caffeine, and loud noises as much as you can. I still drink coffee and eat many sodium-laden foods, but I quit smoking several years ago, which has reduced my episodes. I understand all your fears and what you are looking at. When mine kicks in, no aid helps me understand speech clearly; it sounds like everyone has a Kazoo for a voice. I gave up on music, which was the worst part for me. There is little known about this disease, and there is no cure. It will stay with you and keep nibbling away at your precious hearing. I do not suffer much of the dizziness, so I am fortunate. I can offer 15 years of experience, and I have a link or two for you:



http://www.menieres.org/



http://www.menieresinfo.com/



I have been taking Dyazide (PeePee pills) for about 9 years, which has kept things in check for the most part. Now you need to prepare for the journey that awaits you: leaving the hearing world, and entering the world of the Deaf. Be prepared for some surprises on this journey, some very nice ones, and some painful ones. You are not alone.

thank you so very much for this.. smile

From: Spelchek
10/08/2008 01:39:20

As you may know, I also have this affliction. My advice is to avoid: stress, smoking, sodium, caffeine, and loud noises as much as you can. I still drink coffee and eat many sodium-laden foods, but I quit smoking several years ago, which has reduced my episodes. I understand all your fears and what you are looking at. When mine kicks in, no aid helps me understand speech clearly; it sounds like everyone has a Kazoo for a voice. I gave up on music, which was the worst part for me. There is little known about this disease, and there is no cure. It will stay with you and keep nibbling away at your precious hearing. I do not suffer much of the dizziness, so I am fortunate. I can offer 15 years of experience, and I have a link or two for you:


http://www.menieres.org/


http://www.menieresinfo.com/


I have been taking Dyazide (PeePee pills) for about 9 years, which has kept things in check for the most part. Now you need to prepare for the journey that awaits you: leaving the hearing world, and entering the world of the Deaf. Be prepared for some surprises on this journey, some very nice ones, and some painful ones. You are not alone.

From: candybrowneyes
10/07/2008 19:09:25


Loveskygal wrote:

Oh, sorry to hear the bad news! I give you a big huggs. you have our TD members friends here with you, :) Hey can you using sign language as well? by the way, I am born deaf and hard life with my children are hearing, you know! I am proud of my children are grown on their own, they are doing good, I am releived tho .



you are in my prayer!



HUGSS LSG

LSG thank you so much for that. Yes I know ASL! Its a wonderful language! Glad your kids are doing so well, I know it must have been rough.  Seems as though they have a very strong and wonderful mom to learn from smile  glad I have all the TD friends here. 



From: Loveskygal
10/07/2008 19:04:38

Oh, sorry to hear the bad news! I give you a big huggs. you have our TD members friends here with you, :) Hey can you using sign language as well? by the way, I am born deaf and hard life with my children are hearing, you know! I am proud of my children are grown on their own, they are doing good, I am releived tho .


you are in my prayer!


HUGSS LSG

From: SafariGardenGuy
10/07/2008 18:46:50

oh man I am sorry to heard about your story it sure sad  but hey  be positive keep  go see Dr  check on you...  I am HOH   guess what you won't believed it  my parent found out I am deaf when I was  7 yrs old  huh   can you believed it  what a shocked dang  been  learning  speech in special school  anyway i had my brain inside like ringing or hissing little loudly bother me it been started when I was I cant remmy maybe 30's   right now I am 48 yrs old  before that time its little bad  bother me I went to see Dr   check my ear   and test mri  other specialist   found nothing huh  I pissed so I ignore it will me my lifetime  before  its bad now    just little very tiny  still  not bother me  oh well  I get used to it  it sucks and that's life , SGG

From: JaVu
10/07/2008 12:48:58

Honey....


You have overcome your problems with your positive thoughts. My hats off to you....

From: candybrowneyes
10/07/2008 12:08:11


SmileyAngelGalz wrote:

 IF U HAVE Menieres Disease MUST WHAT U EAT  AVIOD FROM SALT OR GREASY OR OIL OT TOO FATTY IF  EAT THOSE WILL GET DIZZY OR SICK OR PUKE ETC U NEED CAREFUL WHAT  U EAT AND KEEP SHAPE CANT BE GAIN WRIGHT MAKE WORSE DIZZY AND SICK THATS WHY I BEEN CAREFUL WHAT I EAT AND KEEP SHAPE STAY GOOD HEALTH

Yes SAG, my doctor has advised me of the same things, thank you for looking out smile

From: MSMERMAID4U
10/07/2008 11:09:04

ur very welcome im glad i did smiles hugs  too and also welcome to our world as well 



From: candybrowneyes
10/07/2008 10:56:11


MSMERMAID4U wrote:

dont feel so bad about this  this is what the good lord wants for u  maybe  he has his plans  and u may be good for our community 



i know how u feel  me myself have gone thru  this  over  all the years  even tho i went to a deaf school and then on to  gally  frustrated in the deaf world  but over the years have overcome it  but  to losing all my hearing  oh how sad it was cant talk on phone any more  nor can i hear the music  but time moved on and  now i m accepting myself as  being profoundly deaf  several of my friends have cohered me to go for the cohlear implant but checking into it and the pros and cons of it  ive decided  if this is what god wanted of me    be myself and accept me  for the way i am  i decided  im against ci  for several reasons  the dangers of it  etc     so i hope u  can accept urself being this way too  smiles   and lots of hugs  

That is such a good way of looking at it. If I hadnt had all of this happen I suppose I wouldnt be here smile  thank you for that. You just made my day!

From: MSMERMAID4U
10/07/2008 10:50:16

dont feel so bad about this  this is what the good lord wants for u  maybe  he has his plans  and u may be good for our community 


i know how u feel  me myself have gone thru  this  over  all the years  even tho i went to a deaf school and then on to  gally  frustrated in the deaf world  but over the years have overcome it  but  to losing all my hearing  oh how sad it was cant talk on phone any more  nor can i hear the music  but time moved on and  now i m accepting myself as  being profoundly deaf  several of my friends have cohered me to go for the cohlear implant but checking into it and the pros and cons of it  ive decided  if this is what god wanted of me    be myself and accept me  for the way i am  i decided  im against ci  for several reasons  the dangers of it  etc     so i hope u  can accept urself being this way too  smiles   and lots of hugs  




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